-
American College of Obstetrics & Gynecology
Challenging the clinical evidence cited in their 'Opinion on Uterine
Artery Embolization' and asking them to reconsider their position.
This is being put to the next ACOG committee.
-
Harry Cayton
The Patient Czar
Highlighting the fact that patients are not informed about treatment
options and suggesting a change in the law to ensure full information.
Also suggesting that patient information leaflets from doctors should
have some regulation about accuracy.
Harry Cayton said that these were important issues, which they
would be following up.
-
Melanie Johnson
Parliamentary Under Secretary of State for Public Health
Via Boris Johnson MP - following up on the rather unsatisfactory
response from Hazel Blears, her predecessor. She responded via
Boris and thanked FEmISA for their work in this important area.
-
National Press Release
issued
to major news organisations with the aim of promoting
FEmISA's campaign to raise women's awareness of alternative
treatments to hysterectomy and to promote the existence of
this
website.
-
Diana Organ MP
MP
for Forest of Dean
Informing her about the formation of our group and seeking common
points of interest with a group campaigning against
unnecessary
hysterectomies, which she has helped to start and which
operates
within her constituency.
-
National Press Release
issued
to major national news organisations outlining FEmISA's
concerns over the results of the NICE Interventional
Procedures
Guidance and the review process itself.
NICE will be
carrying out a full appraisal of all procedures
/techniques which offer women the option of avoiding
hysterectomy over the coming months.
-
Julia Drown MP
MP for Swindon
Asking to help women in Swindon to have access to embolisation
treatment.
The local Primary Care Trust and gynaecologists refused to
refer
women from Swindon to have embolisation.
Julia Drown is very supportive and has written to local
gynaecologists for an explanation.
-
Baroness Cumberlege of Newick
Conservative Health Spokesperson
Informing her about embolisation and asking for her help in gaining
access for women at a national level.
She has asked to be kept updated about embolisation.
-
Dr Gwyneth Lewis
Department of Health
Asking her advice on how to improve access for
women to
embolisation. Informing her of new clinical evidence on embolisation
on an ongoing basis.
-
The
Royal College of Obstetrics and Gynaecology
Asking them to ask their members - gynaecologists, to inform women
of embolisation as a treatment option for fibroids.
They have declined to do this.
-
Charles Dobson - Department of Health
Responsible for NICE Topic Recommendations
Recommending
embolisation for a NICE [National Institute for Clinical
Excellence]
Technology Appraisal on embolisation to show the superior
efficacy and
cost effectiveness of this fibroid treatment versus
hysterectomy.
-
Hazel
Blears MP
As
Parliamentary Under Secretary of State for Public Health
Asking
for her help in ensuring that gynaecologists inform women of
embolisation as a treatment option for fibroids and complaining about
the misleading information on hysterectomy on the Royal College of
Obstetrics and Gynaecology Web Site.
-
Dr
Gordon Munro
Acting CEO, The Medicines Control Agency
Complaining
about the lack of information on side effects and
complications from
hysterectomy in the RCOG patient brochure on
hysterectomy.
They advised although there are tight controls over information
supplied with licensed medicines, there is no comparable regulation
of information
about different surgical options.
-
Prof. Black, President
The Royal College of Physicians
Asking
for help in persuading gynaecologists to inform women about
embolisation
as a treatment option for fibroids.
She
said she would speak to the President of RCOG.
-
Prof. Peter Morris
President,
The Royal College of Surgeons
Asking
for help in persuading gynaecologists to inform women about
embolisation
as a treatment option for fibroids.
He
said he would pass our letter on to the President of RCOG.
-
Mr. Steve Walker
CEO, NHS Litigation Authority
Warning
that possible litigation may result if women are not informed
about
embolisation [and other alternatives] to hysterectomy for
fibroids, as
hysterectomy has a significant complication rate both short
and long
term, which would not be experienced by women being
treated by
embolisation.
They
asked for more details
-
Mr. Tom Hain
The Centre for Health Information Quality
Expressing
concern at the quality of health information in RCOG's
patient
information leaflet on hysterectomy.
-
NICE Interventional Procedures Appraisal Consultation
FEmISA submitted a comprehensive document in response to the
consultation on
proposed recommendations. This
included 120 new
clinical papers, analysis of the most important ones,
information on the
morbidity and mortality of hysterectomy and other
treatments and
recommendations to improve the process.
NICE said they would consider all the documents submitted under
the consultation process and would perform a systematic review of
embolisation.
-
Mr. Simon Williams
Director of Policy, Patients Assoc.
Asking for help in persuading gynaecologists to inform women about
embolisation
as a treatment option for fibroids and concerns about the
NICE
Interventional Procedures Review on embolisation.
-
Prof. Rory Shaw
Chairman, National Patient Safety Agency
Asking them to encourage gynaecologists to inform woman about UAE
as a
treatment option for symptomatic fibroids and complaining about
the lack
of information on side effects and complications from
hysterectomy in
the RCOG patient brochure on hysterectomy.
They referred FEmISA to NICE.
